HOPE
Website: https://hope.projects.umfiasi.ro
Project name: HOPE - How Oncogenetics Predicts & Educates
Project is developed under Erasmus+ Strategic Partnerships for Vocational Education and Training
Project period: 01.09.2018 – 31.10.2021
Project No.: 2018-1-RO01-KA202-049189
Project partnership:
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UNIVERSITATEA DE MEDICINA SI FARMACIE GRIGORE T.POPA IASI (Romania)
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FUNDATIA EUROED, Iasi (Romania)
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Centre Jean PERRIN, Clermont Ferrand (France)
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Medical University-Plovdiv, Plovdiv (Bulgaria)
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University of Szeged (USZ), Szeged (Hungary)
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Asociatia ROHEALTH – Clusterul pentru sanatate, Bucharest (Romania)
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GREENSOFT, Iasi (Romania)
Aim: Every day, worldwide, millions of people fight a battle against cancer, undergoing devastating therapies that hugely impact on their Quality of Life. Over the next 2 decades, the number of new cases is expected to rise by about 70% (WHO, 2017). Oncogenetics can contribute to change this future scenario, addressing those people for which prevention is still possible and the disease’s onset avoidable.
This medical discipline, in progressive expansion, is focused on understanding and monitoring the genetic predispositions of persons at risk, because of mutations or family histories of cancer.
Through guided professional decisions, the implementation of evidence-based prevention strategies will lead to considerable improvements in clinical decisions and outcomes. In order to move towards this predictive system, it is essential to raise awareness of those vulnerable people and to empower them.
On this basis, it will be possible to facilitate an appropriate checking and an early detection of prodromes, as well as the modification of harmful habits and behaviours. The focus of the project is to raise awareness on the importance of the existence and expansion of oncogenetics, as a discipline depending on advances in understanding genes associated with inherited susceptibility to common adult malignancies.
The main target group:
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- Medical specialists: specialist in oncogenetics, oncogenetics adviser, psychologist, oncologist, gynecologist, epidemiologist, geneticist, surgeon, specialist in molecular biology, bioethics specialist and medical management
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- Patients and their families at risk of hereditary or familial cancer
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- Medical institutions
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- Lecturers in medicine (Medical Universities)
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- Educational centres
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- Public at large
Results:
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– Mapping research on situation/strategies/support institutions and specialists/best practices of the genetic consultancy/oncogenetics at Central and East European level
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– Profile of the specialists of the multidisciplinary consulting group in oncogenetics
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– Training guide for advanced high-specialized intervention in oncogenetics
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– Open Online Course on Oncogenetics
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– HOPE Mobile APP (iOS & Android) – predict & keep informed on the risk of cancer
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– Chart on Oncogenetics standards and procedures for medical institutions
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– From a past of illness towards a future of health – Guides, informative and multimedia materials to raise awareness of patients and families with a history of hereditary or familiar cancer on the importance of undergoing risk assessment through appropriate procedures
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– Multiplier events in 4 countries: New frontiers in dealing with cancer – HOPE – How Oncogenetics Predicts & Educates
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– International trainings with medical specialists on advanced oncogenetics
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